Welcome

Welcome to our little corner of the internet. Our hope with this blog is to keep those interested, informed of the process and share all of the ups and downs that this adventure will lead us through. No matter what the outcome of this process for us, we are anxiously waiting to see how Spinraza will change the lives of those taking this medication. We do not know what lies ahead for us, but we, being Christians, are leaning into God and His strength throughout the entire process. Check back often to see how we are doing and feel free to comment with questions you may have, and we will try to answer them as best we can.

Don’t worry – I am with you. Don’t be afraid – I am your God. I will make you strong and help you. I will support you with my right hand that brings victory. Isaiah 41:10