Home | Our Spinraza Adventure

About us

Every parent hopes that when their baby is born that the baby is healthy. When Chris was born, his parents saw a healthy baby boy that...

Our Feelings Leading Up to The First Appointment

Chris, Katie, and I have been processing the significance of the drug Spinraza since we attended the webinar in early January 2017. We...

Our Timeline

Chris is born 1976 Chris is diagnosed with SMA & Brandie is born 1978 Chris is MDA poster child for Kentucky 1981-82 Chris & Brandie...

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